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Note of Thanks PDF Print E-mail
Wednesday, 26 May 2010 15:19

A Note of Thanks ~ 5/17/2010 

~ By Dawne, foundation grant recipient

I wanted to let people know just how much The Stephen A. Comunale, Jr. Foundation helped me.  I can never thank them enough.  In August of 2009 I underwent surgery to remove a tumor.  I woke up 3 weeks later in the ICU and was told that they had found cancer in my small and large bowel, several lymph nodes and in my pancreas.  After a 13 hour complicated surgery, I developed pneumonia and MRSA in my lungs, a surgical wound infection, C-diff, and several infections in my abdomen.  I was in the hospital for 2 months and was readmitted 5 times since.

I will never forget the day in October when I realized I had run out of PTO and I received an $11 pay check.  I was devastated.  I was just recently divorced and had no one else to depend on.  I didn't know how I would pay my rent, car payment and utilities.  I cried for hours on end that day.  At the hospital, a social worker came in to talk with me and gave me an application to fill out for help from the Stephen A. Comunale, Jr, Family Cancer Foundation.  I filled it out, gave it back to her. Within just a few days I received a phone call from Marisa asking how they could help most.  I was shocked, and couldn't believe that someone wanted to help me, someone I didn't even know.  I told her I needed help with my electric bill, gas bill and car insurance.  She asked for the account numbers and it was taken care of, I was even given a gift card to Giant Eagle for grocery assistance.  I wasn't allowed to eat at that time so I used it at the Giant Eagle Pharmacy.  When I was discharged one of my antibiotics cost me $100 (my co-pay).  Without the help I received I would have been unable to get the medication I needed.

The illness and being so sick and weak was enough to handle but when I didn't know how I could pay my bills, that was enough to push me right over the edge.  I am feeling much better now, and haven't been in the hospital since March.  Actually, in the last month my strength is returning along with my energy level.  It was a long hard road and there were times I didn't think I would make it. 

I have so many people to be thankful for, my daughter who paid my rent, my surgeon who kept me alive and also the Stephen A. Comunale, Jr. Family Cancer Foundation for the financial help I received.  I remember it was around Thanksgiving that Marisa once again called to offer me a holiday meal for my family.  I did not accept the offer because I still wasn't allowed to eat food (had a feeding tube) and was going to visit with my daughters for Thanksgiving.  I wanted someone who could eat and enjoy the food to have it, but I did appreciate the offer...it was very kind of them.

~Dawne

On behalf of the entire Stephen A. Comunale, Jr. Family Cancer Foundation, we would like to thank Dawne for sharing such a personal and heartfelt story.

 
Holiday Outreach PDF Print E-mail
Tuesday, 19 January 2010 11:25

Holiday Outreach ~ January 11, 2010 - Akron Beacon Journal

~ By Jewell Cardwell

Beautiful bouquets to the Stephen A. Comunale Jr. Family Cancer Foundation for ALL the good works it's doing in the community.

Here is the newest outreach, shared with me by foundation spokesperson Marisa Lamkin:

''The Stephen A. Comunale Jr. Family Cancer Foundation launched its first holiday meal program during the 2009 holiday season and what a success it was! During the weeks of Thanksgiving and Christmas, we provided holiday meals consisting of a turkey or a ham, a loaf of baked bread, a fresh-baked pie and all the fixings that go with a great holiday meal, to 50 families in Summit County battling cancer. We provided these meals with the help of Great Harvest Bread Co. (in Fairlawn), Hickory Harvest Foods, Hitchcock Fleming & Associates, Hilton Akron/Fairlawn and I.M. Good Snacks, each of which contributed goods or services to this worthy cause.

''Most of the families chosen to receive a meal were referred by local nurses, social workers and other organizations within Summit County that are involved in the day-to-day care of those within these families who are battling cancer. With so many meals being given out, many were hand-delivered by foundation volunteers to families unable to pick up their meals.''

Amanda Comunale, foundation co-founder, noted, ''It was one less thing they needed to worry about during the holidays, considering everything else going on in their lives."

Interested in volunteering or assisting with the 2010 holiday meal campaign? Please contact Marisa at 330-835-5985. To learn more about the foundation, please visit http://www.stephencomunale.org. 

 
Spin-For-Life - The Viewpoint Of A Survivor PDF Print E-mail
Wednesday, 18 November 2009 23:13

November 18, 2009 ~ By Casey McCluskey

Casey McCluskey

I am one of the fortunate people associated with the Stephen A. Comunale, Jr. Family Cancer Foundation that began with Stephen himself.  I have known Stephen, Amanda and John since we were little kids, running around the neighborhood, playing together and causing all sorts of havoc.  Our families took ski trips together every winter out West where we would blend our families together to get the biggest discount on lift tickets.  I will forever remember Greg Stevens being “my dad” so I could ski for free at Steamboat.  And although we all grew up and went our separate ways, I have always thought of the Comunales as family.  So it was devastating to me when Stephen got sick with cancer and passed away.  To this day, I still shake my head at the whole thing.  

Last year, in the first year of Spin-For Life, I remember thinking what a cool thing it was.  My brother, Connor, and I went to the event, and we rode for a couple hours.  I was inspired by the whole thing and was really proud of the Foundation and what it was doing for people in the community.  It never even crossed my mind that I would be on the opposite side of the road less than a year later.  In June of 2009, I was diagnosed with breast cancer.  I turned 30 five days later.  I have no family history of breast cancer. I was so young, and I run eight miles a day.  There was no explanation for this.  But, explanation or not, I had my diagnosis.  I was lucky, though.  I found my cancer early and was able to have a single mastectomy that gave me clear margins, and I found out that no lymph nodes were affected.  I just had to fight through the chemo and I would be done.  When I went to Akron General for my first chemo treatment, I met with a social worker who talked with me about all the different support that was offered in the area.  One of the biggest organizations that this gentleman talked about was the Stephen A. Comunale, Jr. Family Cancer Foundation.  It really put a lump in my throat to hear him talk about this.  It was hard to believe that I could possibly be a patient that would benefit from the Foundation.  I wasn’t supposed to be a patient; I was supposed to be a fundraiser! I was so proud of the Comunale family and everything they have done with the Foundation because I was able to see, first hand, the impact that it had on patients and how much good it could do.  

When Spin-For-Life came around this year, I really wanted to ride.  It was a matter of personal pride for me.  I wanted to show myself that I was still on the side of helping the Foundation grow, but I also felt like I was riding for all the people it helped too.  I felt like I could represent those of us who have gone through cancer and chemo and thank the Foundation for its support.  My brother, Connor, was able to sponsor a bike this year, but because of scheduling conflicts, he wasn’t sure that he would have enough riders for it.  I watched how hard he worked to raise the money and I was going to make sure he had a rider on that bike for every hour.  I had only finished my chemo one week before, but I was going to ride.  I showed up, bald as can be, with a new shirt I had just been given. It said, “Survivor” and had a pink ribbon on it.  It was the perfect riding gear for me.  My brother had two other riders who showed up so I knew there were three hours that needed to be represented on his bike and I was going to do it.  I wasn’t able to ride all out or turn the resistance all the way up or even race to the top of the hill.  It wasn’t about that.  It was just about staying on the bike.  I was not the most impressive rider that day.  I was not the fastest.  I was just honored to be there, staying up on that bike.  After cancer, not everyone gets the opportunity to keep riding.  I was given that opportunity and I will continue to ride, not only for me, but for all those who cannot.

 
October 6, 2009 ~ By Ken Hanson PDF Print E-mail
Tuesday, 06 October 2009 00:00

My introduction to the Stephen A. Comunale, Jr. Family Cancer Foundation came in September 2008 when I met Stephen’s brother John on a cycling expedition. A shared passion for the sport and a common interest in health and nutrition quickly forged a lasting friendship. Though cycling made it possible for our paths to cross initially, it was soon apparent that our motivations transcended sport. As our friendship developed, we quickly discovered that cancer has affected both of our lives in very powerful ways.

 The Foundation has a deep place in my heart as I too have lost family to cancer. In 1999, my father passed away after a long and difficult battle with Lymphoma B cancer. Having just started my junior year of high school, I was beginning the new and difficult journey of becoming a man and looking toward college. The subsequent loss of my father changed many things in my life and prompted me to begin thinking about the father I wanted to be for my own children. Realizing that life can sometimes be far too short, I wanted to make positive changes that would allow me to live longer. This motivation, combined with my longtime interest in nutrition, caused me to realize that knowing more about healthy eating wouldn’t be such a bad thing. Two years later, I was a freshman majoring in Nutrition Science at California Polytechnic State University. In 2002, during the second half of my freshman year in college, my mother was diagnosed with terminal cancer. Within three months of the diagnosis, she passed away. It was not the first time my mother had battled cancer. In 1999, when my father was receiving chemo treatment, my mother was receiving treatment for breast cancer in the very same hospital building just a few floors up.  Her treatment that year had been successful, although she made a major effort to keep the treatment discreet.

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Spin-For-Life -- The Viewpoint Of A Non-Cyclist PDF Print E-mail
Tuesday, 01 September 2009 00:00

September 1, 2009 ~ By Kevin Fink 

Although I’m a big supporter of the Stephen Comunale, Jr. Family Cancer Foundation, I was admittedly skeptical about the idea of the Spin-For-Life event.  But having participated in it during its inaugural year, I can tell you that it is nothing short of awesome, as every person I attended with would later attest.  Part of my skepticism stemmed from the fact that (a) I was not a cyclist and (b) I had never even attended a spinning class.  And in all honesty, I had no desire to spend 1 hour, let alone the 3 hours I ended up spending, on a bike in a room full of people I didn't know.  But as I said, I am a big supporter of the Foundation and so I showed up to give my support.  And I am happy I did.  I loved it!! 

If you’re not familiar with the Spin-For-Life event, it takes place at the Hilton on West Market Street in Akron, Ohio, who puts their full staff behind the event.  On the day of the event, the largest conference room in this hotel is filled with an unwieldy amount of stationary spinning class bikes.  Each bike is sponsored by a team and is to be ridden by that team for an entire 6 hours.  A team could be one person who loves to spin more than anything and is adamant about riding the entire 6 hours on her or his own.  Or a team could be a group of people who divide up the time riding on the bike.  I was initially part of a team and agreed to ride 1 of the 6 hours our team would put in.  Each team pays the "donation amount" for its bike and the proceeds go to the Foundation.  Some team members pay their portion of the donation amount individually and some go out and tell people about the event and ask people to make a contribution to sponsor their efforts on the bike for the Foundation.  I did both. The "donation amount" for a bike is really a goal and not an absolute required amount.  Some teams raise a little less and some teams raise a little more.  The point is to raise funds for the Foundation through an event that brings people together and inspires them to work together for a common cause.

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Spin-For-Life -- The Viewpoint Of A Runner PDF Print E-mail
Tuesday, 01 September 2009 00:00

September 1, 2009 ~ By Heather Caristo 

When I walked into the room with the sea of bikes last year, I thought to myself, "Am I in over my head?  I run, I don't ride bikes."  My head was spinning more than the bikes' wheels were about to be.  Then it hit me, the room full of smiling faces that had been there interspersed in bikes the whole time.  People of all ages, shapes and sizes with the same smiles and same determination to complete their allotted time in the saddle.  The sense of camaraderie allowed my nerves to take a backseat:  We were all in this together!!   
I chose my bike and adjusted the seat and as I gently sat down I was reminded of the comfort of my padded shorts; it was going to be okay.  When everyone got ready and mounted up, it felt as if we were going into battle.  We cheered as our team captain gave us some last minute instructions and off we went!!  The pedals they were a-turnin'!!

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